My life, in a Tumblr

How Cancer interupted my life, my plans, my dreams, and in general, really pissed me off.

"Anniversaries"

Yesterday was the 1 year anniversary of my first chemo infusion.

I thought about it a lot, as I sat in my Pharmacology of Anesthestics class.  I would rather be sitting here, than there, I kept thinking.

I remember going to the infusion center and falling apart.  I had held it together pretty well until that point.  Diagnosis, finding the right oncologist and surgeon, talking about treatment modalities and outcomes, reading studies, etc.  I think it was even remarked upon, to which I always answered “I’m a nurse; I’m in control.”
Until that day I had to show up and bare my arm.  I’m a patient, and I’m helpless.

I imagine it must have been tough for George.  I don’t think he has seen me in that state too often.  My mom’s death, and this.   Otherwise, I can lock it up when I have to.

The thing that irritated me was the false chipper “how are we doing today?!” from the first infusion nurse.  “I have cancer, how the FUCK do you THINK I’m doing?” I said.  I quickly appologized, but…I had to do a psych component for my nursing degree…didn’t you?  You don’t approach someone with red-rimmed eyes, head hung low and trembling with the same tone as you would a kid standing in line at Disneyland!

I found this quite often in onocology.  As if their false cheer was going to infect me and my mood.  I KNOW what the reality is, I CAN’T be distracted by your cheeriness, what I’d really like is just some sincerety and sensitivity for how I FEEL.  I try to make sure that I approach my patients this way.  I don’t care if I’m having the worst, or the best fucking day of my life…they likely won’t be feeling the same way, and hey…I’m a NURSE, MY day doesn’t matter.  If they WANT to be distracted by cheer, well, I can do that too, but I’m not going to cram my spoon full of sugar down anyone’s throat who doesn’t want it.  I realize that some things have to just be “understood” and allowed to “be.”

So, how did I get on this tirade? Oh yeah…I was thinking about yesterday.

I even was reminded about it when I was at the grocery store looking for some type of snack that I could put in my book bag for those days when I can’t fit even the idea of a meal in edgewise.  My eyes came to rest on a box of granola bars and I could feel the contents of my stomach rising up my esophagus and I thought I was going to lose it right there in the grocery store.  Granola bars, and lots of water, were my pre-infusion meal.  They tell you that it’s best to have some light meal in your stomach.  Lance talked about a guy who ate two chicken ceaser salads because they were easiest to throw up later.  People actually show up with bags of food, chinese take out, burgers, whatever…I couldn’t muster this.

But there I was, fighting the nausea at the thought of granola bars.  Funny how one’s tastes change.  The things I loved and craved are gone, (like sushi) and are now replaced with strange desires I refuse to give into (like cottage cheese on spaghetti.  WTF?  I can’t explain it…as a good Italian, I refuse to try it, but there are still nights where my mind will tell me to eat this.)

Also, I can never look at red jello again.  The syringe full of adriamycin looks just like red jello before it’s congealed.  Just thinking about it makes me queezy.  If I ever need to barf on queue, I know what to think about.

Anyway, I was thinking about all the people whom are in those chairs now.  I was hoping they could feel the “hang in there” vibe I was throwing their way.  It does get better.  Next year, you’ll be back to appreciating all the other things in your life that you once despised, like exams, taxes,  paying bills… those things area all infinitely better than sitting in that infusion chair!

Jurassic Park

I had that horrible, terrifying Jurassic park dream again, in which I and a small group of people (at first…they dwindle down as the dream goes on) are the last survivors on earth after proliferation of large, fast, toothy beasts that take over as dominant species.

This time, the dream was a deja vu—or rather, I kept saying in the dream “last time, this and this happened.  THIS time, let’s do this…” So, clearly…this isn’t a dream about a fear of reptiles, it’s about a fear of a recurrent cancer.

The ambulance bay sirens outside became screams in my dream, and I woke up after only a few hours of sleep.  Had I been home, I would have wakened George, and poor thing, in his disoriented fatigue, he would listen to the dream, put his arm around me and say that the cancer isn’t going to come back, not ever.  “How can you be so sure?” I always ask him.  “I just know” he always says.

This recurring dream is new.  I never dreamed it before cancer.  Early in the cancer, I had a horrible dream (that I attributed to the toxic stuff they were pumping me full of) about robots and dinosaurs…it was a fight between technology and biology—can I dream in any more obvious metaphors?

In this dream, since I’m not in active treatment, there was no technology.  There was a green and rolling hillside, and the landscape was dotted with fast moving dinosaurs.  It was the landscape I imagine in “Watership Down”…the place Fiver is always describing, on a hill, with a view of everything surrounding it. 

Anyway, this time, as I dreamed, I contemplated what survival would require, and mean.  Eventually, I thought…we’re going to have to go outside and use the bathroom, gather food, and eventually, that food is going to run out.  I contemplated running out there in the midst of all the velociraptors and Tyranosaurus Rex and just getting it over quickly.  I woke up when I realized, in the dream, that I was prolonging the inevitable.

I used to like that movie—but now, after so many of these dreams, after it’s become a metaphor for what it’s like to live with cancer, I don’t think I’ll ever be able to watch it again.

and to think they made a ride like this? I  can’t imagine wanting to go on it.

sometimes, it hits me

Sometimes, without warning, it just hits me, that a few months ago, I was worrying about the radiation treatments, or the chemo.  I forget now, looking back, how bad it really was.  Sometimes, for a second, I can remember the feeling of dread, every day for six weeks, going for the radiation, crying in the machine every time for a week or so.

Now I dread tests, the anesthesia machine check out next week, stuff like that.  And it makes me feel very, very lucky to be here, doing this now, when last year, I felt so horrible, and so much fear, and wanted to be here with my friends.  Well, my friends are now a year ahead of me, but they’re still there for me when I need them, to answer questions and show me the ropes.

It’s funny how it hits you like that, sometimes…from the side, walking down the hall, back from the bathroom, or the kitchen, —boom—and then you’re back in the hallway again, taking that step, walking back from the bathroom or kitchen.  For a moment, I was in that hell that was last year, dreading, crying, fearful.

Nothing bothers me anymore.

I guess that’s called “perspective”  (something we used to sing in architecture school….”per-SPEC-tiiiiive….” when we were rendering.  It’s taken on a whole new meaning.)

Sunday Morning Panic

me, in full panic mode before a test

I’ve been in this position so long I think I’m growing roots!

I’m in full panic mode before my pharmacology of anesthestics test, on tuesday.

Just picture me in this position until then :)

(wish me luck!)

Lunch with Bill

So, I look completely cross-eyed and fat :(

And I have a peculiar voice!  Bah!

http://www.youtube.com/watch?v=RLERkjMS56k&feature=sub

Thinking about last year

I had lunch with my friend Bill, (the famous YouTube Bill) whom is in town for business.  I realized that talking about cancer it still a bit tough, though, not as much as you might think (I’m a nurse, damnit, I can talk about poop while I’m eating, or really gross procedures—no big whoop)

Still, I thought about how lucky I am to have the opportunity to be here, to be studying, to be alive, to be meeting with friends and having burgers…it brought to mind this Annie Lennox song, that I thought about a lot when I was going through treatment last year.  I’ll end it there, because I need to get back to the studies, and you’ve read enough of me lately ;)

good things

I’m not Martha Stewart, but I try to be happy about things that are awesome, compared to cancer—

Like, I was STOKED to be cramming for an exam again, and went in super confident(though, I did answer a couple questions stupidly and without stopping to REALLY read the question—so a couple were backwards, ah well, can’t be a perfect score!)

I got to spend about an hour with the OR table, practicing the various positions all by my lonesome.  I need to make drawings of the levers, and that way I can look at it before bed time and tell myself that the feet go down when I crank the right crank backwards, toward me, but the head goes up when I crank away from me.  I want to get it right on the first try, bang, without having to fidget with it back and forth.

And, my director, who I thought disliked me, now calls me “Kiddo” and somehow now thinks I’m some sort of Genius because I’m one of 10 people who aced her pop quiz—honestly, I had to guess at one of them, but I guessed right and to her, that’s all that counts.  I think this is hilarious.

AND—they turned the danged heat off, that came on in the middle of the night, Friday, and made my room about 250 degrees!  I’m just happy to be in a normal temperature range, now—maybe I’ll get some sleep tonight!

hey, sometimes it’s the small things.  A year ago, I was recovering from Surgery, and in loads of pain, worrying about the next treatment phase (chemo) so I’m happy to be here, even if I am far from home, miss my fella and pooch, and car, and the weather, and…and…and…

:)

What did you do yesterday?

I ask because I’m humbled and almost ashamed.  I sat on my ass all day, studying,  at the library, then came home, ate dinner, and sat on my ass in my room, and studied some more for Monday’s homeostatics exam.  (I thought I knew a lot about respiratory physiology, HAH!)

So, yesterday, while you and I were on our largest skeletal muscles (are they? I think they are) my friend Jen was walking hers OFF.  She walked 20 MILES in order to raise money and awareness to help find a cure for breast cancer.  And here’s the sick part—she’s going to do it again today, and tomorrow!!!

When I was a kid, I did three walk-a-thons for muscular dystrophy.  I went door to door to get my neighbors to sponsor me (ten cents a mile…can you believe? TWO lousy bucks for the whole 20 miles? and then had trouble collecting AFTER the walk…don’t get me started!) 

My best friend, Heidi, and I walked a 32 km (20 mile) circuit around San Francisco.  At one point, we were so tired and delirious we took our shoes off and walked barefoot on the great highway, along the coast.   You ache SO DAMNED MUCH, you hurt SO BAD, and yet you can’t stop putting one foot in front of the next…I know what walking 20 miles feels like to a pre-teen, I don’t know what it feels like to do it as an adult, and to do it THREE DAYS IN A ROW!!!  I tell you—this is the epitome of self-sacrifice.  Jen is an amazing lady.

I wish I could be there when she’s walking into these check-point cheering stations…her stamina and courage give me inspiration to do well in school—people are out there, doing things, raising money and sacrificing of their own time and bodies so that there can someday be an end to this bullshit called cancer.  So that someday, someone else’s life won’t be derailed like mine was.

I hope that in my lifetime, no one ever has to be on the other end of the telephone, listening to a pathology report, and hearing the words “you have cancer” ever, ever again.  Because, as much as you think you’ve been through some rough shit in your life (believe me,  I did think I had been) you are never going to know the depths of HELL like you are once you hear those words.

“My own fucking body is the enemy.  I can’t run away from this one”  that’s what goes through your mind for a whole year.  You lay awake, and think you can almost hear little cancer cells inside you going “we’re going to kill you, nya-nya-nya.”  You try to be brave, whatever THAT means, and think about the good fight—chemo, radiation, drugs…sure, you’ll do it, because you HAVE to, not because you’re BRAVE…because you HAVE to.

You think to yourself—my alternatives to this treatment are what?  One final swim in the ocean?  One heart-felt sprint and then attempt to fly off a tall building?  What? 

Nothing, that’s what.  You put your head down, you cry, and you show up and bare your arm for the infusion nurse to stick poison in your arm that’s going to make you sicker than you’ve ever been…shit that’s going to hurt GOOD cells, as well as bad cells.  They take you to the brink of death, kill everything in sight, in hopes of getting all the cancer cells…all of them.  Like swallowing a nuclear bomb, or an internal napalm.

The lining of your stomach, your mouth, your esophagus—everything you swallow feels like shards of fucking glass.  Your blood—that’s all cells, buddy!  Have you ever walked up 5 or 10 steps and been so winded you nearly black out?  That’s what happens when you have no red blood cells to carry oxygen to your head, heart, and lungs…

You don’t know about your reproductive organs, because you can’t feel those normally, but you KNOW that somewhere in your ovaries, or your testicles, if you’re a guy, all those little DNA that might have one day been “Junior” are singing a swan song—goodbye cruel world.  Your hair doesn’t like the chemo, your eyelashes, your eyebrows, your pubic hair, your armpit hair…you walk around looking like a department store mannequin with nothing on.

But I’m alive, you tell yourself…maybe not in the moment, because, the moment absolutely sucks.  “I will be alive” is more accurate of what you’re thinking and feeling.  You keep telling yourself that spring is coming, and your hair will grow back, and it won’t be so cold, and one day you won’t feel like this anymore…one day, you’ll be back to studying in some over-air conditioned library, and worried about tests, or paying tuition…stupid shit like parking tickets, and taxes.

Jen is walking 20 miles today, so that maybe someday, someone else won’t have to go through what I did last year.

If you haven’t already, please click on this link to donate any sum, no amount is too small, or repost this link to wherever you might…email it, even…maybe someone you know is willing to forego that cup of coffee today, or lunch, and help bring an end to breast cancer. 

To those of you that already have, thank you so much!

http://www.the3day.org/site/TR?px=1636513&fr_id=1299&pg=personal

Even in my dreams, they won't leave me alone

I was just rounding the corner with my coffee when I rembered the dream I had this morning.  I woke up early, and then decided to go have an additional lie down because it was WAY to early (thanks, Mr. lean-on-the-horn on 168th street this morning)

I dreamed I was at a nice, upscale,  exotic restaurant (maybe Thai?  or Indian food?) and the waitress brought over something that she gave the person I was with, and then she threw the rest of it away without offering any to me.  How odd, I thought.  It was like a spoonfull of what looked like yogurt, mixed with mango—I don’t know…the point is she threw the rest at some kid who had asked her for some, and my thinking went’ “the correct way to have handled that would have been to offer me some first, and if I had said yes, get the kid his own later.”

She then kept coming back, harping on me and hurting me.  The dream ended with me wrestling her, she never got unpleasant or stopped smiling, but she was so strong—she started by trying to tie what little hair I have into a pony tail (as I guess was customary for diners in the restaurant?) and I kept trying to push her off, and she was pulling my hair and I was saying “OW!!! NO!!! Get OFF!!! Chemo curls!! My scalp is still tender!  Don’t!” and so forth.

In writing this, I realize that the oblivious waitress, indifferent to my suffering is Cancer.  She even took my hair off in trying to tie it back.  The thing she was offering my guest was life—a small bit of it, say a year, that was both sweet, and sour, but I didn’t even get it offered to me, instead it went elsewhere—and this is probably symbolic of the year I lost.

I wonder when I’ll stop having this thing be part of my life.  I know there’s a point when you finally are beyond it, but it hasn’t come for me, though I know it’s early yet.

In the meantime, if you’re a waitress and you try to put what little hair I’ve got in a ponytail, I will wrestel you to the ground, even if you are strong, and appear unbothered by my best efforts :)

The universe is trying to make up for 43 crappy years

So, wow—my head is going in every direction this morning.  And it’s not because I had trouble falling asleep and then the fire alarm went off in the dorm so I only managed to get in 3 hours.  It’s more.

I reconnected with one of the most infuential people in my life the other night by phone—a very dear friend, John Fiddler, whom I met because he was my preceptor during nursing school, but about my age.  He’s one of the most compassionate, best nurses I’ve ever met.  He reminded me of my friend Jean, whom was influential in me always wanting to become a nurse.  Many times after graduating, I implemented the little things John taught me, and I always sent a silent message of gratitude towards him into the universe for such wise teachings.

Coming back to New York, I’m pleased to say, that it’s friends, like John has  become, that make the experience rich and friendly, rather than lonesome and miserable.  He’s a Buddha.

Next, I don’t know what possessed me, but I chose to look up another influential person in my life, a professor I studied with in Florence Italy, an important and famous Italian architect whom is credited with starting a whole architecture movement or school of thought (imagine starting a school of thought…a style?) with whom I also managed to establish a friendship, but lost contact with over the years.  Ah, the miracle of Facebook, and the internet!

Next, I found my Swiss cousin, Luca, with whom I was once so close, but whom I thought I’d never hear from again because I also lost contact with him through the years.  Also on Facebook  I think by now he must be a General in the Swiss army, because 13 years ago, he was a Captain, I think.  Every time I’m in Switzerland, we manage to drink too much, laugh too much, swear too much, and in general have an awesome time together…we become somehow more sinister and devious together, he’s like the little brother I never had, a Swiss playboy, with many girls always around him and vying for his attention…it’s always sort of cool to be his cousin and be the one girl that gets his focus 100%.

But this morning, when the fire alarm went off in the dorms at 6:30 am, nary 3 scant hours from when I was able to put down my respiratory physiology book and shut the light off, I found myself outside, in a bleary-eyed daze.

Eileen, my program director and professor of one of my classes showed up for work (it’s the same building) and as we stood outside there, waiting to come back in she said, “Hey, Lis (XD can you stand it!? She actually called me “Lis!”) “Nice job on the pop quiz yesterday…you got all of the questions right!”  and I instantly felt wide awake.

“you’re kidding?! because I thought I was going to bomb that, since I hadn’t reviewed anything from class, I was so busy with the assigned reading for the other two classes and this upcoming test…I thought for sure you were going to think I was a big dope!”

“well, you must have been paying attention in class, because there were SOME people who got only ONE right”

Wow…just wow…I told her “I hope I do as well on the tests that actually count toward my grade, Eileen…” She said “You will, you’ve got that passion inside, that drive…”

So, now at least she knows that much :)


What I didn’t want is to fall flat on my face and have them say that the year off I took hurt me and my chance at ever succeeding at this program.  I didn’t want to tuck my tail, and return home with $60,000 dollars worth of student loan debt and no job with which to pay this money back.  Oh yes, if I fail,  I still have to pay back that money!

Maybe my luck has changed?  Maybe the next 43 years are going to be good?  They say fortune favors the brave, which is really just a way of saying, I think, that you make your own fortune; there’s no such thing as luck.  I’m here to tell you that there must be.  Traditionally, I’ve had it go the other way for me.  If ever there was a person for whom the toast was going to end up sloppy-side-down, it’s me.  But maybe this makes me try harder.  I do read extra chapters that weren’t assigned, just because I think that it’s going to help me understand things better.

I owe it to my patients, afterall.  Their lives are going to be in my hands soon.

In any case, on 3 hours sleep, I’m walking on clouds today—I’m heading to class in an hour (what was the point of going back to bed?) and then I’m meeting my friend Bill for lunch at the Shake Shack in the upper west side…(EDIT—oops, that’s NEXT week! this is how sleep-deprived I am!) and then it’s off to start the real grinding away at the study for this test on Monday.

Wish me luck!!!  Or wish me stamina if you don’t believe in luck :)
fortune favors the brave, or the well-prepared for battle, I suppose.